News- EIKRA

ECRD will take place ONLINE on 14-15 May (more information) The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare […]

IRDiRC has created a new section on its Resources and Recommendations in order to provide additional knowledge on rare diseases from a different perspective, the Social and Humanities Sciences. The […]

IRDiRC is interested at hearing from you, in the frame of your own engagement in Rare Diseases with COVID-19 crisis: How it is affecting your work/practice How it is redirecting […]

Dear All, While the COVID-19 pandemic is spreading through the world, we wish to send a message to the IRDiRC community and express our nearness and encouragement to you all.The […]

New interview of the IRDiRC chair, Dr Lucia Monaco recently had with ALS News Today. COVID-19 is impacting the daily lives of every person in the planet and it is […]

The 11th International Conference on Rare Diseases and Orphan Drugs (ICORD), South Africa, included the Africa-Rare initiative launch and facilitated multi-stakeholder engagement in the challenges facing, and opportunities for, Africans living […]

You are not alone as we all are one! The Indian Organisation for Rare Diseases (IORD) ‘Raising the Awareness: Prevention of Rare Diseases’ conference in Hyderabad, on the World Rare […]

IRDiRC has celebrated the Rare Disease Day with the release of Dr. Lucia Monaco interview with Horizon Magazine. A precious opportunity to make a stand on where we are in […]

We need a global approach to diagnose and treat rare diseases, according to a new World Economic Forum paper, “Global Access for Solving Rare Disease: A Health Economics Value Framework”. […]

New article on IRDiRC has just been released today: “Malattie rare: «e ora non dimentichiamo la ricerca di base»”! It is an interview, IRDiRC chair, Dr. Lucia Monaco, IRDiRC chair, […]