IRDiRC is delighted to announce the new leadership on the Funders Constituent Committee (FCC), Dr Adam Hartman, NIH, as Chair and Dr Catherine Nguyen, INSERM, as Vice-Chair. Dr Hartman and […]
Read MoreA new IRDiRC publication is out! The Boosting delivery of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook has been just published by Nature Reviews – Drug Discovery. The […]
Read MoreChrysalis Project The Funders Constituent Committee (FCC) has set up a jointly Task Force with the Companies Constituent Committee (CCC) and the Patient Advocates Constituent Committee (PACC). The overarching goal […]
Read MoreConsideration of legislative framework to support the diagnostic odyssey commonly encountered in the instance of rare disease. New paper on the undiagnostic odyssey, an important topic faced by many rare […]
Read MoreWORLD ORPHAN DRUG CONGRESS USA WEBINARS organizes this event scheduled on Wednesday April 22, 12 – 1pm EDT. There are many unprecedented challenges facing the rare disease community due to COVID-19 […]
Read MoreThe Rare Diseases Are Not Rare! Challenge is a competition sponsored by the National Center for Advancing Translational Sciences (NCATS), which is part of the National Institutes of Health. We are asking […]
Read MoreECRD will take place ONLINE on 14-15 May (more information) The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare […]
Read MoreIRDiRC has created a new section on its Resources and Recommendations in order to provide additional knowledge on rare diseases from a different perspective, the Social and Humanities Sciences. The […]
Read MoreIRDiRC is interested at hearing from you, in the frame of your own engagement in Rare Diseases with COVID-19 crisis: How it is affecting your work/practice How it is redirecting […]
Read MoreDear All, While the COVID-19 pandemic is spreading through the world, we wish to send a message to the IRDiRC community and express our nearness and encouragement to you all.The […]
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