IRDiRC is delighted to announce the appointment of new members to the Regulatory Scientific Committee (RSC). Established in 2022, the Regulatory Scientific Committee (RSC) was created to address regulatory gaps […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) participated in the 2026 edition of World Orphan Drug Congress (WODC) USA in Boston (MA, USA), contributing to discussions focused on accelerating innovation […]
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Medical devices for rare diseases are becoming increasingly important as healthcare innovation expands beyond orphan drugs and biologics. Emerging technologies such as digital remote monitoring systems are creating new opportunities […]
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We are pleased to share a new publication produced by the IRDiRC Functional Analysis Task Force, highlighting the growing impact of multi-omics in advancing rare disease research and precision medicine. […]
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The third Hope for Rare Science Conference will be held in Shanghai, China from June 25th to 27th, 2026. The conference is hosted by Hope for Rare Foundation, with National […]
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IRDiRC is delighted to be represented by multiple members at the Undiagnosed Day 2026 taking place in Gdansk (Poland) and online. Bringing together specialist clinicians, clinical geneticists, and invited experts, […]
Read MoreOn Rare Disease Day 2026, International Rare Diseases Research Consortium reaffirms its unwavering commitment to advancing research for the 300 million people and families living with rare diseases worldwide. With more than […]
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Want to stay informed about the latest breakthroughs, global initiatives, and collaborative efforts shaping the future of rare disease research? Join the International Rare Diseases Research Consortium (IRDiRC) community by subscribing to […]
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A new analysis of orphan drug approvals across six global regulatory regions highlights significant delays in access to innovative therapies for people living with rare diseases. The study, conducted by […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) is pleased to announce the appointment of Shekhar Natarajan (Vice President, Head of EU and International Regulatory Affairs at Dyne Therapeutics, USA), as Chair, and Diana […]
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