ERDERA will open its Clinical Trial Call 2026 (ECTC) on 1 July 2026 to support multinational, GCP‑compliant Phase I, Phase I/II and Phase II interventional clinical trials in rare diseases. This call aims to generate robust […]
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Researchers, policymakers, patient advocates, and healthcare leaders from across Europe and beyond convened in Sofia, Bulgaria in March, for the European Rare Diseases Research Alliance (ERDERA) National Mirror Groups (NMG) […]
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Undiagnosed Day 2026 is a two‑day, clinician‑led meeting in Gdansk (Poland) bringing together specialist clinicians, clinical geneticists and invited experts to support phenotype‑led diagnosis through live case discussion, shared clinical […]
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The European Rare Disease Research Alliance (ERDERA) has re-opened its survey to better understand where the rare disease research community most needs external consultancy support with the goal to turn […]
Read MoreIRDiRC is delighted to be represented by multiple members at the Undiagnosed Day 2026 taking place in Gdansk (Poland) and online. Bringing together specialist clinicians, clinical geneticists, and invited experts, […]
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A global community of clinicians, patient leaders, regulators and researchers met in Heidelberg (Germany) and online for the second International Conference on Clinical Research Networks (CRNs), organised by the European […]
Read MoreIRDiRC members Marjon Pasmooij (Head of the Science Department at the Dutch Medicines Evaluation Board, and member of Therapies Scientific Committee), Mary Wang (Director Patient Engagement at Genespire, and member […]
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The 2nd International Conference on Clinical Research Networks for Rare Diseases, organised by ERDERA, Rare Diseases International and IRDiRC, will take place in hybrid format from the 9-10 of December, […]
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