A global community of clinicians, patient leaders, regulators and researchers met in Heidelberg (Germany) and online for the second International Conference on Clinical Research Networks (CRNs), organised by the European Rare Diseases Research Alliance (ERDERA), Rare Diseases International (RDI) and the International Rare Diseases Research Consortium (IRDiRC). CRNs are structured collaborations of expert sites, laboratories, […]
Read MoreIRDiRC members Marjon Pasmooij (Head of the Science Department at the Dutch Medicines Evaluation Board, and member of Therapies Scientific Committee), Mary Wang (Director Patient Engagement at Genespire, and member of Interdisciplinary Scientific Committee) and scientific project manager Alexandra Tataru participated in the Multi-Stakeholder Workshop on Prioritization of Rare Diseases for ATMP Development, organized by […]
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The 2nd International Conference on Clinical Research Networks for Rare Diseases, organised by ERDERA, Rare Diseases International and IRDiRC, will take place in hybrid format from the 9-10 of December, 2025 in Heidelberg, Germany. Under the theme “Mobilising the Global Rare Disease Clinical Research Ecosystem”, this global event will gather experts and stakeholders from across […]
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