The Foundation for Rare Diseases has developed a series of three online courses with European and international partners to better understand innovative therapies, health data, and translational research in the field of rare diseases. Developed with the support of a medical education grant from ASGCT and Pfizer, this course focuses on the scientific and translational […]
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The European project ERDERA has opened a call to select patients with a rare disease to participate in a training course organized by TEDDY Network with the support of c4c-S, IMAGINE, and EURORDIS, from 2-3 May 2025, in Athens, Greece. The training will provide tailored educational content in English, including youth-friendly resources, videos, serious games, webinars, and […]
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The EURORDIS Open Academy has launched a survey to know more about training needs, such as the reasons for engaging in training, main topics of interest, and the roadblocks that would prevent people from attending a training. The survey is open now and will be closing on 31st May, 2023. The target audience is rare […]
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