IRDiRC congratulates with Dr. Daria Julkowska for the EURORDIS Black Pearl 2020 – European Rare Disease Leadership Award! Congratulations! <<The European Rare Disease Leadership Award recognises the outstanding leadership and […]
Read MoreIRDiRC congratulates Prof. Annemieke Aartsma-Rus for having been awarded of the EURORDIS Black Pearl 2020 – Scientific Award! Congratulation for this important achievement. <<The Scientific Award recognises Professor Aartsma-Rus’ exceptional […]
Read MorePodcast episode of Improbable Developments with Dr Dave Pearce, President of Innovation and Research Sanford Research and and Vice Chair of the IRDiRC Consortium Assembly. Dr. Pearce shares his inspiring […]
Read MoreIRDiRC has participated at the Rare2030 Panel of Experts workshop that has been recently held in Brussel, thanks to Dr. Lucia Monaco, our Chair. Rare 2030 is a foresight study […]
Read MoreThe IRDiRC newsletter special flash edition is out! The early bird registration for the joint RE(ACT) Congress and IRDiRC Conference has been extended until FRIDAY Dec 20th! IRDiRC members have […]
Read MoreIRDiRC is an associate partner of the ECRD. The event is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the […]
Read More“Yakup’s Journey to Hope” was created in collaboration with the GA4GH Driver Project and The European Joint Programme on Rare Diseases (EJP RD). Follow the story of Yakup as he […]
Read MoreThe goal is to create a unique platform that does not exist anywhere else, a European multi-sector Partnership for health innovation Five industry associations representing pharmaceutical, biotech and medical technologies […]
Read MoreDr. Aartsma-Rus is a professor in translational genetic and a member of IRDiRC Therapies Scientific Committee. In this video she tells us why IRDiRC is needed in the rare disease […]
Read More11 – 14 March 2020. Berlin, Germany EARLY REGISTRATION IS OPEN, SUBMIT YOUR ABSTRACT! The BLACKSWAN Foundation and IRDiRC, the International Rare Diseases Research Consortium, are glad to announce the RE(ACT) Congress and IRDiRC Conference […]
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