As part of the NIH’s Somatic Cell Genome Editing (SCGE) program, the Office of Strategic Coordination (Common Fund) intends to publish a prize competition announcement to solicit entries for the multi-phase TARGETED (Targeted Genome Editor Delivery) Challenge. The TARGETED Challenge aims to improve the current state of in vivo delivery technologies for genome editors in two […]
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The next installment of the “Challenges in Pediatric Neuroscience Research Webinar Series”, will be on May 12th, 2023 from 2-3 PM EST. In this episode of our ongoing series, we will be speaking with Dr. Heather Hazlett, a pediatric neuropsychologist at the University of North Carolina at Chapel Hill, about remote neuropsychological assessments. This type […]
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The recording of the Science/AAAS webinar on the subject “Knowledge is power: The urgent need to internationalize databases for rare disease patients” will be made available on September 29th at 12:00 PM EST. The webinar is expected to last approximately 60 minutes, during which a board of global experts (among which Lucia Monaco, former IRDiRC […]
Read MoreThe European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on how to address the unmet needs of rare disease patients by transforming the European Orphan Medicinal Products (OMP) landscape. Dr Lucia Monaco, Chair of the IRDiRC Consortium Assembly, will participate as an expert presenter. The webinar will take place on June 11th from 14.30 – 16.00 CET. […]
Read MoreDECIPHER, an IRDiRC-recognised resource and an associated partner of EJP RD, is organising a webinar to introduce DECIPHER, an online data-sharing platform facilitating the visualisation and contextualisation of rare disease genomic and phenotypic relationships, to enable diagnosis and discovery. The webinar will take place on May 27, 2021 from 15.00 – 16.00 CET. The featured speaker is Julia Foreman, and she will […]
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