IRDiRC

New IRDiRC publication on COVID-19 and rare diseases: Reflections and recommendations

The International Rare Diseases Research Consortium (IRDiRC) has published the results of its COVID-19 survey in the Rare Disease and Orphan Drugs … Read more

FDA announces 2022 grant funding opportunity for rare disease research

The Food and Drug Administration’s (FDA) Office of Orphan Products Development (OOPD) is pleased to announce availability of funds for to support … Read more

UN General Assembly formally adopts Resolution on Persons Living with a Rare Disease and their Families

Following a sustained campaign by rare disease patient advocacy organisations such as Rare Diseases International and with the support of … Read more