Welcome To IRDiRC
Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention
Goal 1
All patients coming to medical attention with a suspected rare disease will be diagnosed within one year if their disorder is known in the medical literature; all currently undiagnosable individuals will enter a globally coordinated diagnostic and research pipeline
Goal 2
1000 new therapies for rare diseases will be approved, the majority of which will focus on diseases without approved options
Goal 3
Methodologies will be developed to assess the impact of diagnoses and therapies on rare disease patients
Latest News
RE(ACT) Congress & IRDiRC Conference held in Berlin [PRESS RELEASE]
We empowered a community that deserves to be heard. #RAREvolution Berlin, Germany –…
Pre-announcement of Joint Transnational Call for proposals “Healthcare of the Future”
The European Partnership on transforming health and care systems (THCS), a Cofund action…
Solve-RD Public Symposium: The Impact of Solve-RD on Research & Care of Rare Disease Patients
Solve-RD, a research project funded by the European Commission for five years (2018-2022),…