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Welcome To IRDiRC

Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention

Goal 1

All patients coming to medical attention with a suspected rare disease will be diagnosed within one year if their disorder is known in the medical literature; all currently undiagnosable individuals will enter a globally coordinated diagnostic and research pipeline

Goal 2

1000 new therapies for rare diseases will be approved, the majority of which will focus on diseases without approved options

Goal 3

Methodologies will be developed to assess the impact of diagnoses and therapies on rare disease patients

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Latest News

New Funding Models Toolbox

May 14, 2025

The IRDiRC Funding Models for Rare Diseases Research Toolbox is designed to support…

New treatment against Duchenne Muscular Dystrophy

May 5, 2025

On the 25th of April, the Committee for Medicinal Products for Human Use…

Preannouncement – Call for research projects on Charcot disease (ALS)

April 29, 2025

Commissioned by the French Ministry of Higher Education and Research, ANR (Agence nationale…