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Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

READ MORE

START A COURSE

Welcome To IRDiRC

Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention

Goal 1

All patients coming to medical attention with a suspected rare disease will be diagnosed within one year if their disorder is known in the medical literature; all currently undiagnosable individuals will enter a globally coordinated diagnostic and research pipeline

Goal 2

1000 new therapies for rare diseases will be approved, the majority of which will focus on diseases without approved options

Goal 3

Methodologies will be developed to assess the impact of diagnoses and therapies on rare disease patients

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Latest News

NINDS creates the Ultra-Rare Gene-based Therapy (URGenT) Network

June 23, 2022

The National Institute of Neurological Disorders and Stroke (NINDS) recently created the Ultra-Rare…

Meeting Summary of the RDI Informal Side-Event to the 75th World Health Assembly

June 22, 2022

Rare Diseases International (RDI) would like to thank all who attended the RDI Informal…

New IRDiRC Publication: Recommendations from the IRDiRC Working Group on Goal 3

May 20, 2022

IRDiRC is pleased to announce that the recommendations from the Working Group on Goal…