Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

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Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

READ MORE

START A COURSE

Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

READ MORE

START A COURSE

Welcome To IRDiRC

Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention

Goal 1

All patients coming to medical attention with a suspected rare disease will be diagnosed within one year if their disorder is known in the medical literature; all currently undiagnosable individuals will enter a globally coordinated diagnostic and research pipeline

Goal 2

1000 new therapies for rare diseases will be approved, the majority of which will focus on diseases without approved options

Goal 3

Methodologies will be developed to assess the impact of diagnoses and therapies on rare disease patients

Watch Our Presentation Video

Latest News

International Conference on Clinical Research Networks for Rare Diseases

September 26, 2022

The International Rare Diseases Research Consortium (IRDiRC) and the European Joint Programme on…

Report on Health Technology Assessment and reimbursement of rare diseases treatment

September 23, 2022

IRDiRC is delighted to share the release of Connecting the dots: Embedding progress…

IRDiRC Announces Creation of Regulatory Scientific Committee to Tackle Regulatory Challenges in Rare Diseases Research – Press Release

September 22, 2022

22 September 2022 – Paris, France – IRDiRC, a global collaborative initiative with the…