Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

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Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

READ MORE

START A COURSE

Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

READ MORE

START A COURSE

Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

READ MORE

START A COURSE

Best Education For Design

Rimply dummy text of the printing and typesetting industry
lorem Ipsum has been the industry's standard

READ MORE

START A COURSE

Welcome To IRDiRC

Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention

Goal 1

All patients coming to medical attention with a suspected rare disease will be diagnosed within one year if their disorder is known in the medical literature; all currently undiagnosable individuals will enter a globally coordinated diagnostic and research pipeline

Goal 2

1000 new therapies for rare diseases will be approved, the majority of which will focus on diseases without approved options

Goal 3

Methodologies will be developed to assess the impact of diagnoses and therapies on rare disease patients

Watch Our Presentation Video

Latest News

Call for Members : 2023 IRDiRC Task Forces

January 30, 2023

IRDiRC launches the Call for Members for the four new Task Forces of…

Rare Disease Day at NIH 2023

January 3, 2023

The National Institutes of Health (NIH)’s National Center for Advancing Translational Sciences (NCATS)…

Orphadata Science granted Global Core Biodata Resource status

December 19, 2022

On 15 December 2022, Orphadata Science was awarded Global Core Biodata Resource status,…