IRDiRC

International Rare Diseases Research Consortium

  • About IRDiRC
    • Who we are
    • Vision & Goals
    • Governance
    • History
    • IRDiRC Policies & Guidelines
  • People & Members
    • Member Organizations
    • Operating Committee
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  • Activities
    • Task Forces & Working Groups
    • Publications
    • State of Play
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    • IRDiRC Conference
    • Scientific contribution
  • Resources & Metrics
    • IRDiRC Recognized Resources
    • RD Metrics
    • IRDiRC Communication Material
  • News & Highlights
    • Newsletter
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    • IRDiRC in the News
    • IRDiRC in Events
  • Get involved
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  • Contact Us
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    • FAQ
  • SAVE THE DATE: IRDiRC Conference and RE(ACT) Congress 2023

    IRDiRC is pleased to announce that the next edition of the 5th IRDiRC Conference and 7th RE(ACT) Congress will be held in … Read more

    SAVE THE DATE: IRDiRC Conference and RE(ACT) Congress 2023
  • RDI partners with EURORDIS Rare Barometer for Global Survey on Journey to Diagnosis for Persons Living with a Rare Disease

    Rare Diseases International (RDI) is partnering with the EURORDIS Rare Barometer Survey project to launch the Global Survey on the Journey to … Read more

    RDI partners with EURORDIS Rare Barometer for Global Survey on Journey to Diagnosis for Persons Living with a Rare Disease
  • NIH/FDA Virtual Workshop on Regulatory Fitness in Rare Disease Clinical Trials

    The National Institutes of Health (NIH), National Center for Advancing Translational Sciences (NCATS) and the U.S. Food and Drug … Read more

    NIH/FDA Virtual Workshop on Regulatory Fitness in Rare Disease Clinical Trials

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Our vision

Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention

 
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CONTACT

IRDiRC – Inserm
Hôpital Charles-Foix
7 avenue de la République
94200 Ivry-sur-Seine
FRANCE

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