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Welcome To IRDiRC

Our vision: Enable all people living with a rare disease to receive an accurate diagnosis, care, and available therapy within one year of coming to medical attention

Goal 1

All patients coming to medical attention with a suspected rare disease will be diagnosed within one year if their disorder is known in the medical literature; all currently undiagnosable individuals will enter a globally coordinated diagnostic and research pipeline

Goal 2

1000 new therapies for rare diseases will be approved, the majority of which will focus on diseases without approved options

Goal 3

Methodologies will be developed to assess the impact of diagnoses and therapies on rare disease patients

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Latest News

Training event on paediatric clinical research for young people living with a rare disease – Open call for participants

April 10, 2025

The European project ERDERA has opened a call to select patients with a…

The different contributions of the industry in public-private partnerships in Rare Diseases Research continuum

April 9, 2025

IRDiRC is delighted to present the outcome of the collaboration between the European…

Dr. David Pearce – Speaker at WODC USA 2025

March 27, 2025

We are delighted to announce that IRDiRC Chair, Dr. David Pearce, will be…