The European Rare Disease Research Alliance (ERDERA) has re-opened its survey to better understand where the rare disease research community most needs external consultancy support with the goal to turn practical insights from researchers and stakeholders into targeted consultancy services that help projects overcome common bottlenecks and generate robust, timely evidence. Launched in September 2024 […]
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We are thrilled to announce the launch of the European Joint Programme on Rare Diseases (EJP RD) survey aimed at assessing the knowledge and impact of Rare Diseases research (data) resources and tools developed within the project. As a member of the Rare Diseases research community, your input is invaluable. This survey will help in […]
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PARIS, FRANCE, JULY 5th, 2022: The International Rare Diseases Research Consortium (IRDiRC) is pleased to announce today the release of its Rare Diseases Research Initiatives State of Play 2019-2021 Report. This report is based on scientific articles and press releases published between 2019 and 2021; it seeks to inform stakeholders and the rare diseases community […]
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