Tag: rare diseases

ICMRA ‘Rare’ Symposium 2024

We are delighted to join the ICMRA ‘Rare’ Symposium and Workshop 2024, a multi-stakeholder event focusing on rare diseases organized by the International Coalition of Medicines Regulatory Authorities (ICMRA) and hosted by Swissmedic. This exclusive symposium is open to selected stakeholder organizations and regulators, providing a unique platform to discuss and address the pressing challenges […]

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Mark your calendars for RE(ACT) Congress 2025!

Welcome to the pinnacle event in rare diseases research, the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation, the International Rare Diseases Research Consortium (IRDiRC) and the European Rare Diseases Research Alliance (ERDERA). From March 5th to 7th, 2025, we will gather in the vibrant city of Brussels (Belgium) for an […]

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Lyfe Languages – Universal Medical Translator now available

Lyfe Languages is happy to announce that its Universal Medical Translator is now available via the link https://www.lyfelanguages.com/ Lyfe Languages is an open-source online platform that translates medical terminologies into Indigenous languages. It is led by young Indigenous Language Champions, who work with their elders on translations. Culturally appropriate Indigenous text and audio translations are […]

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Mark your calendars for WODC USA!

Only 8 days to go until the World Orphan Drug Congress USA 2024 in Boston (MA, USA, date: April 23-25). The WODC USA presents a golden opportunity to showcase the impactful work we’re doing and explore how collaborative efforts are shaping the future of rare disease research. Reserve your spot at the globally defining event […]

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Nominations open for ORDI Rare Star Awards

As the DNA Day is approaching on April 25th, to celebrate the 10th year anniversary of the Organization for Rare Diseases India (ORDI), an inaugural “ORDI Rare Star Awards” will be launched. These awards aim to honor and celebrate individuals who have made outstanding contributions in various categories related to rare diseases. Take some time to […]

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Join the 9th Annual RARE Drug Development Symposium!

The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.The Symposium is planned to take place on April 29th-May […]

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IRDiRC’s Functional Analysis Task Force in person meeting

IRDiRC Functional Analysis Task Force recently convened for a dynamic 1.5-day workshop in Paris!🇫🇷 Members of the task force from all over the world came together and discussed methodologies and strategies to advance functional analysis for rare diseases. With collaborative spirit at the forefront, the task force members worked on putting together a manuscript on […]

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Symposium on “Gene therapy is coming of age”

The Institute for Interdisciplinary Innovation in healthcare is organizing a symposium on “Gene therapy coming of age”, taking place on 28 March, 2024, at the Palace of Academies in Brussels, Belgium. The symposium will include sessions on: Recent research and clinical advances Patient perspectives Panel debate on economic and societal challenges I3H Annual Lecture “Gene […]

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Join the Global Rare Diseases Research Symposium on May 23-25 in Shanghai!

IRDiRC is delighted to co-host, together with Hope for Rare Foundation and Fudan University, the Global Rare Diseases Research Symposium & The Second China Rare Disease Research and Translational Medicine Annual Conference on May 23-25 in Shanghai (China). The conference will last for 2.5 days with 21 parallel sessions and several satellite meetings. It will […]

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