IRDiRC Funders Constituent Committee member, the Orphan Disease Center University of Pennsylvania, is offering 3 research opportunities focused on 3 different rare diseases. The program will provide a one-year grant […]
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Cerebrum DAO is a community-powered network organization dedicated to sourcing, funding, and translating research that advances solutions to extend healthy brain lifespan. Their current research priorities include: Cerebrum DAO offers project […]
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ANR Generic Call for Proposals 2026 (AAPG 2026) is the main national funding call from French National Research Agency, having the goal to help the scientific community in public and […]
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ERDERA’s patient-engagement working group has opened an online survey to gauge how rare-disease patient organisations experience their role in publicly funded research, including projects financed under ERDERA’s predecessors, EJPRD and the […]
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IRDiRC is proud to announce the publication of the latest article in Therapeutic Advances in Rare Disease: “From Roadmap to a Sustainable End-to-End Individualized Therapy Pathway.” This publication builds on the […]
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IRDiRC has four Scientific Committees: Diagnostics, Therapies, Interdisciplinary, Regulatory. The Interdisciplinary Scientific Committee (ISC) is a multi-stakeholder, multi-disciplinary group of experts working on rare disease (RD) data sharing, ontologies, natural history, biobanks, […]
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On the 25th of April, the Committee for Medicinal Products for Human Use (CHMP) of the European Medicines Agency (EMA) gave givinostat (Duvyzat), a novel histone deacetylase (HDAC) inhibitor, a […]
Read MoreCommissioned by the French Ministry of Higher Education and Research, ANR (Agence nationale de la recherche) will launch a specific call for research projects on Charcot disease, also known as […]
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“Breaking down silos and fostering collaboration to help rare disease patients” – The World Orphan Drug Congress convenes top pharmaceutical and biotech companies, public and private funders, patient advocacy groups […]
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The European project ERDERA has opened a call to select patients with a rare disease to participate in a training course organized by TEDDY Network with the support of c4c-S, IMAGINE, […]
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