Call for experts

IRDiRC Therapies Scientific Committee (TSC) – Call for New Members

call formembers

IRDiRC brings together global stakeholders across research, diagnostics, therapies, funding and patient advocacy to accelerate progress for people living with rare diseases.

The Therapies Scientific Committee (TSC) is an international expert committee that helps guide priorities in rare disease therapy development. Through its Task Forces and Working Groups and in close collaboration with the other IRDiRC Committees, the TSC contributes to the development of new ideas and collaborative initiatives across the rare disease field.

Current recruitment focuses on strengthening the committee’s expertise in scientific, technical and regulatory priority areas.

We are looking for candidates with:

  • A proven track record of professional experience in the field of rare diseases
  • Demonstrated expertise in one or more of the following areas:  – Simulation and modelling, including innovative trial design for small populations – Digital health and data systems – Regulatory science and global regulatory frameworks 
  • Strong understanding of international research, development and regulatory landscapes, including experience working across jurisdictions
  • Experience working in academia, industry, regulatory agencies or other relevant organisations involved in therapy development
  • Experience contributing to research, innovation or policy in the rare disease field.

Key competencies and requirements

Ability to work effectively in multidisciplinary and international environments and to collaborate constructively across sectors and cultures

  • Good command of English in both spoken and written contexts
  • Motivation and ability to contribute to the strategic goals and ongoing work of the TSC
  • Availability and willingness to actively participate in committee activities, including regular monthly online meetings, and contributions beyond scheduled meetings

Commitment and expectations

Membership of the TSC is a voluntary role within an active and collaborative international group.

Members are expected to:

  • Participate in monthly online meetings, including preparation, and contribute to ongoing committee activities and outputs.
  •  Attend one annual in-person meeting.

The appointment is for a three-year term, with the possibility of a one-time extension.

Application process

Interested candidates are invited to submit their curriculum vitae, a short biosketch and a letter of motivation. Applications should be sent to scientific.secretariat[@]irdirc.org by 11 May 2026.