IRDiRC members Marjon Pasmooij (Head of the Science Department at the Dutch Medicines Evaluation Board, and member of Therapies Scientific Committee), Mary Wang (Director Patient Engagement at Genespire, and member […]
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The 2nd International Conference on Clinical Research Networks for Rare Diseases, organised by ERDERA, Rare Diseases International and IRDiRC, will take place in hybrid format from the 9-10 of December, […]
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The Rare Care Centre (Perth, Western Australia), in collaboration with Syneos Health Communications, has launched a powerful new animation and e-learning resource designed to help educators better support students living […]
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IRDiRC Chair and members, Dr. David Pearce, Dr. Gareth Baynam, Helene Cederroth and Mikk Cederroth have co-authored a new publication on the importance of the Undiagnosed Hackathon in finding new […]
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IRDiRC Funders Constituent Committee member, the Orphan Disease Center University of Pennsylvania, is offering 3 research opportunities focused on 3 different rare diseases. The program will provide a one-year grant […]
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Cerebrum DAO is a community-powered network organization dedicated to sourcing, funding, and translating research that advances solutions to extend healthy brain lifespan. Their current research priorities include: Cerebrum DAO offers project […]
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ANR Generic Call for Proposals 2026 (AAPG 2026) is the main national funding call from French National Research Agency, having the goal to help the scientific community in public and […]
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ERDERA’s patient-engagement working group has opened an online survey to gauge how rare-disease patient organisations experience their role in publicly funded research, including projects financed under ERDERA’s predecessors, EJPRD and the […]
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IRDiRC is proud to announce the publication of the latest article in Therapeutic Advances in Rare Disease: “From Roadmap to a Sustainable End-to-End Individualized Therapy Pathway.” This publication builds on the […]
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IRDiRC has four Scientific Committees: Diagnostics, Therapies, Interdisciplinary, Regulatory. The Interdisciplinary Scientific Committee (ISC) is a multi-stakeholder, multi-disciplinary group of experts working on rare disease (RD) data sharing, ontologies, natural history, biobanks, […]
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