Despite advancements, most rare diseases lack effective therapies, underscoring the necessity for a strategic overhaul in the approach to research and development. To address the multifaceted challenges in rare disease […]
Read More
A new IRDiRC paper on “Global health for rare diseases through primary care”, the work of the IRDiRC Primary Care Task Force, is now available open access in the The […]
Read More
The European Joint Programme on Rare Diseases is organizing and End-User Training intended for potential users of the Virtual Platform (VP) that is developed in the context of the EJP […]
Read More
We are delighted to join the ICMRA ‘Rare’ Symposium and Workshop 2024, a multi-stakeholder event focusing on rare diseases organized by the International Coalition of Medicines Regulatory Authorities (ICMRA) and […]
Read More
Welcome to the pinnacle event in rare diseases research, the RE(ACT) Congress and IRDiRC Conference 2025, held jointly by the BLACKSWAN Foundation, the International Rare Diseases Research Consortium (IRDiRC) and […]
Read More
Lyfe Languages is happy to announce that its Universal Medical Translator is now available via the link https://www.lyfelanguages.com/ Lyfe Languages is an open-source online platform that translates medical terminologies into […]
Read More
Only 8 days to go until the World Orphan Drug Congress USA 2024 in Boston (MA, USA, date: April 23-25). The WODC USA presents a golden opportunity to showcase the […]
Read More
As the DNA Day is approaching on April 25th, to celebrate the 10th year anniversary of the Organization for Rare Diseases India (ORDI), an inaugural “ORDI Rare Star Awards” will […]
Read More
The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to […]
Read More
IRDiRC Functional Analysis Task Force recently convened for a dynamic 1.5-day workshop in Paris!?? Members of the task force from all over the world came together and discussed methodologies and […]
Read More