The first edition of the IRDiRC Newsletter in 2020 is out! IRDiRC celebrates the Rare Disease community with messages from Dr. David Pearce – Vice-Chair and Dr. Lucia Monaco – Chair of the consortium that official announces the launch of the IRDiRC Roadmap 2020. Furthermore, in this edition you will find a New Recognized Resource, two new members, and the reminder for the Standard Registration deadline of the RE(ACT) congress – IRDiRC conference and free registration to students from Berlin institutions/universities! Last but not least, IRDiRC mention on the “Orientations” EU document.