Welcome to Rare Disease Ghana Initiative (RDGI) and Iberoamerican Alliance for Rare Diseases (ALIBER) to the IRDiRC – PACC committee! The RDGI is represented by Samuel Agyei Wiafe, Founder and Executive Director and ALIBER by Alba Ancochea as its Advocacy Advisor.
Are you part of a patient organization? Do you share the IRDiRC vision and goals, then submit your application and become a new Umbrella Patient Advocacy Member.