Category: IRDiRC

We are pleased to share that the webinar series organized by Together for Rare Diseases & ERICA, brought together over 150+ members of the rare disease research community, who had […]

We are pleased to announce that the RE(ACT) Congress and IRDiRC Conference 2025 have extended the regular registration and abstract submission deadline until the end of January. Taking place from […]

The International Rare Diseases Research Consortium is launching a call for experts to support five new activities. Check out the newly approved Task Forces and Working Group : More details […]

The Interdisciplinary Scientific Committee (ISC) and Patient Advocacy Constituent Committee (PACC) are establishinga Task Force on “Stigma and rare diseases”. Globally more than 300 million people are living with a rare […]

The Therapies Scientific Committee (TSC) is establishinga Working Group on the Engagement of Young People Living with Rare Diseases in Therapy Development. The aim of the working group is to develop a landscape view […]

The Funders Constituent Committee (FCC), the Companies Constituent Committee (CCC) and the Regulatory Scientific Committee (RSC) are establishing a Task Force on International Regulatory Convergence aiming to identify barriers towards mutual recognition […]

The Diagnostic Scientific Committee (DSC), Interdisciplinary Scientific Committee (ISC), and Therapies Scientific Committee (TSC) are jointly establishing a Task Force on “Bridging Diagnostics to Therapies and Care” with the following objectives: We are […]

The Therapies Scientific Committee (TSC) is establishing a Task Force on Preventive Medicines, where drug activity can either halt or suppress the onset of disease symptoms or the condition itself. Across different stakeholders, […]

The International Rare Disease Consortium (IRDiRC) proudly supports the World Health Assembly (WHA) resolution on Rare Diseases. This is a crucial step towards addressing global disparities in care, research, and treatment for people […]