We are pleased to share that the webinar series organized by Together for Rare Diseases & ERICA, brought together over 150+ members of the rare disease research community, who had the chance to learn about the contributions and the practicalities of public-private partnerships between ERNs and pharmaceutical companies.
With panellists from European Reference Networks, pharmaceutical companies and research infrastructures, the webinar demonstrated the benefits and progresses that can be achieved through research collaboration, unlocking access to data registries, building patient-centred approaches to research, and deploying research to real world settings, ultimately benefiting patients and advancing medical science.
To find out more about the ERNs and how they are key partners in conducting research project with industry, you can find here a recording and summary of the first webinar in December 2024. Likewise, you can learn more about the contributions of the pharmaceutical industry to rare disease research in conjunction with academic partners.
For additional information and updates, follow the T4RD LinkedIn, where Together for Rare Diseases regularly shares information about our upcoming events, developments in the European rare disease research space and relevant EU policy updates.
