The International Rare Disease Consortium (IRDiRC) proudly supports the World Health Assembly (WHA) resolution on Rare Diseases. This is a crucial step towards addressing global disparities in care, research, and treatment for people living with rare diseases.
Read the Position Statement here:
Under the banner of “Health for All”, this resolution has the potential to elevate the visibility of rare diseases on the global health agenda, paving the way for improved diagnosis, care, and treatment for millions worldwide.
? Key priorities endorsed by IRDiRC include:
1️⃣ Data Collection – Encouraging funding and standardization of data to support research and regulatory frameworks.
2️⃣ Data Sharing – Promoting access to and sharing of high-quality regulatory data for all research stakeholders.
This initiative aligns perfectly with IRDiRC’s vision: enabling all individuals with a rare disease to receive an accurate diagnosis, appropriate care, and available therapy within one year of first seeking medical attention.