The Funders Constituent Committee (FCC), the Companies Constituent Committee (CCC) and the Regulatory Scientific Committee (RSC) are establishing a Task Force on International Regulatory Convergence aiming to identify barriers towards mutual recognition […]
Read MoreThe Diagnostic Scientific Committee (DSC), Interdisciplinary Scientific Committee (ISC), and Therapies Scientific Committee (TSC) are jointly establishing a Task Force on “Bridging Diagnostics to Therapies and Care” with the following objectives: We are […]
Read MoreThe Therapies Scientific Committee (TSC) is establishing a Task Force on Preventive Medicines, where drug activity can either halt or suppress the onset of disease symptoms or the condition itself. Across different stakeholders, […]
Read MoreHosted by the BLACKSWAN Foundation, the International Rare Diseases Research Consortium (IRDiRC) and the European Rare Diseases Research Alliance (ERDERA), the RE(ACT) Congress & IRDiRC Conference offers a unique opportunity […]
Read MoreThe International Rare Disease Consortium (IRDiRC) proudly supports the World Health Assembly (WHA) resolution on Rare Diseases. This is a crucial step towards addressing global disparities in care, research, and treatment for people […]
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AFM-Téléthon is launching its 2025 calls for proposals to support international research on neuromuscular disorders and rare genetic diseases. These calls are open to both French and international teams, offering […]
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New funding opportunity from the US National Institutes of Health (NIH) – PAR-25-122: Pilot Projects Investigating Understudied Proteins Associated with Rare Diseases (R03 Clinical Trial Not Allowed) The purpose of […]
Read MoreA new IRDiRC publication, “Fostering International Interoperability of Clinical Research Networks to Tackle Undiagnosed and Under-Researched Rare Diseases” is now available. This publication highlights the outcomes of a 2022 global meeting […]
Read More“The State-of-the-Art of N-of-1 Therapies and the IRDiRC N-of-1 Development Roadmap” is now published in Nature Reviews Drug Discovery. This exciting review explores the emerging field of N-of-1 genetic therapies, specifically designed […]
Read MoreIRDiRC’s Diagnostic Scientific Committee (DSC) plays a critical role in identifying and addressing current and future bottlenecks to rare disease gene discovery and diagnosis. As we work towards improving rare disease […]
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