We are excited to announce the launch of several newly approved Task Forces and Working Groups focused on advancing the field of rare diseases. These groups bring together leading experts from around the world to collaborate on critical issues in rare disease research and treatment. Learn more about each initiative below:
1. Facilitating the Development of Preventive Medicines at Scale for Rare Diseases
This working group aims to drive forward the development of preventive medicines specifically designed for rare diseases.
More details on the experts’ profiles: https://irdirc.org/call-for-experts-irdirc-task-force-on-preventive-medicines/
2. Toward Clarifications, Improvement, and International Convergence in Regulatory Approvals of RD Therapies with a Focus on Advanced Therapy Medicinal Products
This task force will focus on improving and clarifying the regulatory frameworks for rare disease therapies, with an emphasis on Advanced Therapy Medicinal Products (ATMPs).
More details on the experts’ profiles: https://irdirc.org/call-for-experts-irdirc-task-force-on-regulatory-convergence/
3. Engagement of Young People Living with Rare Diseases in Therapy Development
This group will work towards engaging young people living with rare diseases in the process of therapy development, ensuring their perspectives and needs are taken into account.
More details on the experts’ profiles: https://irdirc.org/call-for-members-irdirc-working-group-on-the-engagement-of-young-people-living-with-rare-diseases-in-therapy-development/
4. Stigma and Rare Diseases
Addressing the stigma often faced by individuals with rare diseases, this working group will focus on strategies to reduce stigma and raise awareness.
More details on the experts’ profiles: https://irdirc.org/call-for-experts-irdirc-task-force-on-stigma/
5. Bridging Diagnostics to Therapies and Care
This task force will bridge the gap between diagnostics, therapies, and care for individuals with rare diseases, improving the journey from diagnosis to treatment.
More details on the experts’ profiles: https://irdirc.org/call-for-experts-irdirc-task-force-bridging-diagnostics-to-therapies-and-care/
How to Apply?
If you are interested in participating in any of these exciting activities, please submit your CV, biosketch, and a letter of motivation to the IRDiRC Scientific Secretariat before 9th February 2025.
Submit your application to:
scientific.secretariat[at]irdirc.org