The 11th International Conference on Rare Diseases and Orphan Drugs (ICORD), South Africa, included the Africa-Rare initiative launch and facilitated multi-stakeholder engagement in the challenges facing, and opportunities for, Africans living […]
Read MoreYou are not alone as we all are one! The Indian Organisation for Rare Diseases (IORD) ‘Raising the Awareness: Prevention of Rare Diseases’ conference in Hyderabad, on the World Rare […]
Read MoreIRDiRC has celebrated the Rare Disease Day with the release of Dr. Lucia Monaco interview with Horizon Magazine. A precious opportunity to make a stand on where we are in […]
Read MoreWe need a global approach to diagnose and treat rare diseases, according to a new World Economic Forum paper, “Global Access for Solving Rare Disease: A Health Economics Value Framework”. […]
Read MoreNew article on IRDiRC has just been released today: “Malattie rare: «e ora non dimentichiamo la ricerca di base»”! It is an interview, IRDiRC chair, Dr. Lucia Monaco, IRDiRC chair, […]
Read MoreThis year, IRDiRC joins the International Women Day (#IWD2020) together with EU Commission and many other organizations and groups worldwide. Why? Because still “throughout the European Union (EU), not enough […]
Read MoreThe RE(ACT) Congress and IRDiRC Conference has been postponed. Due to a situation of “force majeure” and international travel policies associated with the COVID-19 outbreak, the congress is postponed to […]
Read MoreToday is the World Birth Defect Day and IRDiRC is happy to support it by raising awareness together with the other hundreds organizations worldwide. There are many types of birth […]
Read MoreThe 9th edition of the Eurordis Black Pearl Awards event is taking place today in Brussels. Irdirc for the second year in a row, will be there with Prof. Annemieke Aartsma-Rus who […]
Read MoreThe first edition of the IRDiRC Newsletter in 2020 is out! IRDiRC celebrates the Rare Disease community with messages from Dr. David Pearce – Vice-Chair and Dr. Lucia Monaco – […]
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