The 35th Annual Meeting of EMSOS will take place this year on 10-12 May, 2023, in Brussels (Belgium), and it will join the efforts of all Belgian University Hospitals and […]
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On March 22, 2023, the Canadian Federal Government announced the launch of Canada’s Rare Disease Drug Strategy with a $1.5 billion commitment over three years to “improve access to new […]
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A new network for nurses has been created to exchange skills, knowledge, solve problems and generate new ideas for the rare disease community. The first meeting to develop the network […]
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Rare Diseases International (RDI) will participate to the WHO Expert Committee on the Selection and Use of Essential Medicines Open Session on 24 April 2023, and provide a statement regarding […]
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The Public Symposium is open to the entire human genetics and rare disease community in Europe and beyond. In addition to presentations on Solve-RD achievements, we are very happy to […]
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This year’s conference theme is “Duchenne Care: 5 Years After the 2018 Care Considerations (Lancet)”, and will take place online on June 7 and 8, 2023, from 15:00 – 18:00 […]
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On May 2 and 3, 2023, the FDA’s Center for Drug Evaluation and Research (CDER) and the Johns Hopkins University’s Center of Excellence in Regulatory Science and Innovation (JHU CERSI) […]
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The World Health Organization (WHO) is seeking experts to serve as members of the Strategic Advisory Group of Experts on In Vitro Diagnostics (SAGE IVD). This “Call for Experts” provides […]
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As part of the NIH’s Somatic Cell Genome Editing (SCGE) program, the Office of Strategic Coordination (Common Fund) intends to publish a prize competition announcement to solicit entries for the multi-phase […]
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The next installment of the “Challenges in Pediatric Neuroscience Research Webinar Series”, will be on May 12th, 2023 from 2-3 PM EST. In this episode of our ongoing series, we […]
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