The EURORDIS Open Academy has launched a survey to know more about training needs, such as the reasons for engaging in training, main topics of interest, and the roadblocks that would prevent people from attending a training. The survey is open now and will be closing on 31st May, 2023.
The target audience is rare disease patient advocates and researchers from any age and country, not limited to Europe.
Complete the survey here: https://www.surveymonkey.com/r/TWYDCQD.