Yakup’s Journey to Hope

“Yakup’s Journey to Hope” was created in collaboration with the GA4GH Driver Project and The European Joint Programme on Rare Diseases (EJP RD). Follow the story of Yakup as he embarks on a journey to find a diagnosis for his neurogenetic rare disease condition. The video premiere was at the GA4GH plenary 2019. Patient can receive a diagnosis through international collaboration and data-sharing.

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