We are thrilled to announce the launch of the European Joint Programme on Rare Diseases (EJP RD) survey aimed at assessing the knowledge and impact of Rare Diseases research (data) resources and tools developed within the project. As a member of the Rare Diseases research community, your input is invaluable. This survey will help in […]
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The European Joint Programme on Rare Diseases, together with the Companies Constituent Committee (CCC) member EFPIA, is organizing the training webinar: “Real-World data, Machine learning and Deep analytics in rare diseases: Regulatory grade data collection for marketing authorization submissions – what is buzz, what is realistic?” that will be held online on 26 January 2024 […]
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