“My care team consists of over 30 healthcare professionals and I can’t recall even one time where one of them asked me about my mental health” (60 y.o. female patient). Alexion is partnered with Thomas Jefferson University to assess and address mental health among Neuromyelitis Optica Spectrum Disorder (NMOSD) patients. Phase 1 of the partnership was a research study titled The […]
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IRDiRC is glad to partner with Alexion’s annual Rare Conversations conference, “Rare Disease Policies: Pioneering the way towards a resilient ecosystem”, that we will partner. The event will reflect on several aspects that may be included in the new legislative framework, trying to answer the question: How to create a resilient rare disease ecosystem for the […]
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