With less than one month to go, registrations are still open for the 2nd International Conference on Clinical Research Networks — a two‑day hybrid meeting designed to align global efforts on data, […]
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Are you advancing research, shaping policy, or driving advocacy for people living with rare diseases? Share your work with Europe’s rare disease community at the European Conference on Rare Diseases & […]
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The World Orphan Drug Congress 2025 brought together leading voices in the rare disease community for 3 days of insight, collaboration, and forward-looking discussion. Representatives from the International Rare Diseases Research Consortium […]
Read MoreRegulatory sandboxes are emerging as a powerful tool to accelerate innovation in healthcare, and their potential in the rare disease space is especially promising as they offer flexible, structured environments […]
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IRDiRC is pleased to share a new publication “What Matters Ethically About How the UDN Has Changed Since Its Inception”, recently published in AMA Journal of Ethics. For individuals living […]
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IRDiRC announces publication of a new manuscript, developed as part of the International Rare Disease Research Consortium (IRDiRC) N-of-1 Task Force: “Applying the IRDiRC N-of-1 Therapy Task Force Eligibility Criteria for Individualised […]
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The 2nd International Conference on Clinical Research Networks for Rare Diseases will take place on 9–10 December 2025 in Heidelberg, Germany, with full hybrid access for participants worldwide. This edition features a […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) is pleased to participate in this year’s World Orphan Drug Congress Europe, taking place from 27–29 October 2025 in Amsterdam, Netherlands. We warmly invite all attendees to visit […]
Read MoreProfessor Sally Ann Lynch, chair of IRDiRC Diagnostics Scientific Committee (DSC), will be chairing the upcoming ERN ITHACA webinar on “Genetics and unique populations: The Case of the Finnish, Roma […]
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IRDiRC Funders Constituent Committee (FCC) Member Fondazione Telethon is pleased to announce a new discovery from San Raffaele Telethon Institute for Gene Therapy (SR-Tiget), which reveals the key liver cells […]
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