IRDiRC members Marjon Pasmooij (Head of the Science Department at the Dutch Medicines Evaluation Board, and member of Therapies Scientific Committee), Mary Wang (Director Patient Engagement at Genespire, and member […]
Read More
The 2nd International Conference on Clinical Research Networks for Rare Diseases, organised by ERDERA, Rare Diseases International and IRDiRC, will take place in hybrid format from the 9-10 of December, […]
Read More
The Rare Care Centre (Perth, Western Australia), in collaboration with Syneos Health Communications, has launched a powerful new animation and e-learning resource designed to help educators better support students living […]
Read More
IRDiRC Chair and members, Dr. David Pearce, Dr. Gareth Baynam, Helene Cederroth and Mikk Cederroth have co-authored a new publication on the importance of the Undiagnosed Hackathon in finding new […]
Read More
IRDiRC Funders Constituent Committee member, the Orphan Disease Center University of Pennsylvania, is offering 3 research opportunities focused on 3 different rare diseases. The program will provide a one-year grant […]
Read More
The 14th edition of the Undiagnosed Diseases Network International Conference will take place in Rio de Janeiro, Brazil, on October 28-31. The Undiagnosed Diseases Network International (UDNI) was established in […]
Read More
Cerebrum DAO is a community-powered network organization dedicated to sourcing, funding, and translating research that advances solutions to extend healthy brain lifespan. Their current research priorities include: Cerebrum DAO offers project […]
Read More
ANR Generic Call for Proposals 2026 (AAPG 2026) is the main national funding call from French National Research Agency, having the goal to help the scientific community in public and […]
Read More
EURORDIS-Rare Diseases Europe is calling on people living with a rare or undiagnosed condition, as well as their families, to register for the Rare Barometer panel and take part in […]
Read More
ERDERA’s patient-engagement working group has opened an online survey to gauge how rare-disease patient organisations experience their role in publicly funded research, including projects financed under ERDERA’s predecessors, EJPRD and the […]
Read More