IRDiRC is excited to share its latest interview featuring Maria Cavaller Belaubi (EURORDIS-Rare Diseases Europe, Spain), co-chair of the “Engagement of Young People Living with Rare Diseases in Therapy Development” […]
Read MoreJust ahead of Rare Disease Day, the International Rare Diseases Research Consortium (IRDiRC) Task Force on Stigma and Rare Diseases convened a pivotal two-day workshop in Paris to tackle one of the […]
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IRDiRC is pleased to share that Shirlene Badger has been elected Vice-Chair of the International Rare Diseases Research Consortium’s Companies Constituent Committee (CCC). Shirlene leads Global Patient Advocacy at Illumina […]
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The IRDiRC Companies Constituent Committee (CCC) is pleased to welcome PacBio as its newest member, represented by Nina Gonzaludo, Global Lead Human Genomics, based in the USA. PacBio is a global leader in long-read sequencing […]
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The International Rare Diseases Research Consortium will be at the forefront of discussions at World Orphan Drug Congress USA 2026, highlighting innovations in rare disease research, personalized therapies, and sustainable approaches to genetic […]
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As part of the Horizon Europe project RealiseD, a short survey is being conducted to better understand how clinical sites identify, approach, and enrol patients with rare diseases. Investigators, study nurses, […]
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The International Rare Diseases Research Consortium (IRDiRC) is pleased to announce that Cerebrum DAO has joined the Funders Constituent Committee (FCC). Cerebrum DAO is an organization focused on advancing research and innovation at […]
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We are pleased to share that earlier this December, ERDERA opened its 2026 Joint Transnational Call on “Resolving unsolved cases in rare genetic and non genetic diseases”. Interested multinational research teams […]
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IRDiRC’s Patient Advocacy Constituent Committee member, EURORDIS-Rare Diseases Europe is organizing a new edition of the European Conference on Rare Diseases & Orphan Products (ECRD), the largest patient-led policy-shaping event on rare […]
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A new IRDiRC feature article published in Drug Discovery Today provides a comprehensive assessment of non-oncology orphan drug development, focusing on productivity and the probability of success for therapies targeting rare diseases outside […]
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