On Rare Disease Day 2026, International Rare Diseases Research Consortium reaffirms its unwavering commitment to advancing research for the 300 million people and families living with rare diseases worldwide.
With more than 65 member organizations — including research funders, companies, patient advocacy groups, and scientific leaders — IRDiRC continues to catalyse global progress through collaboration, innovation, and real-world impact.
Our work is driven by a shared vision: faster diagnoses, new therapies, and meaningful improvements in patients’ lives.
Explore our latest initiatives through our visual highlights and watch the video interview with Maria Cavaller Bellaubi (EURORDIS, Spain), co-chair of the Working Group on Engagement of Young People Living with Rare Diseases in Therapy Development, to learn how young patients are shaping the future of rare disease research: https://www.youtube.com/watch?v=OYa9xVPPssI. Full interview available here: https://irdirc.org/interview-spotlight-maria-cavaller-belaubi-on-empowering-young-patients/
Together, we are building a brighter future for the rare disease community.