We are pleased to share that earlier this December, ERDERA opened its 2026 Joint Transnational Call on “Resolving unsolved cases in rare genetic and non genetic diseases”. Interested multinational research teams […]
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IRDiRC’s Patient Advocacy Constituent Committee member, EURORDIS-Rare Diseases Europe is organizing a new edition of the European Conference on Rare Diseases & Orphan Products (ECRD), the largest patient-led policy-shaping event on rare […]
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A new IRDiRC feature article published in Drug Discovery Today provides a comprehensive assessment of non-oncology orphan drug development, focusing on productivity and the probability of success for therapies targeting rare diseases outside […]
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A global community of clinicians, patient leaders, regulators and researchers met in Heidelberg (Germany) and online for the second International Conference on Clinical Research Networks (CRNs), organised by the European […]
Read MoreIRDiRC is pleased to announce that COMBINEDBrain, represented by Terry Jo Bichell (CEO), has joined the IRDiRC Patient Advocacy Constituent Committee (PACC). The Consortium for Outcome Measures and Biomarkers for […]
Read MoreThe International Rare Diseases Research Consortium Diagnostics Scientific Committee (DSC) has created a Survey on Regulation, Accreditation, and Quality Assessment of Genetic Laboratories. This survey has been developed to map the global regulatory and quality landscape for genetic testing laboratories. […]
Read MoreWe are pleased to announce that Stefano Benvenuti, Head of Public Affairs at Fondazione Telethon (Italy), and Naveed Aziz, Vice President of Research and Innovation at Genome Canada (Canada), have been elected […]
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Want to stay informed about the latest breakthroughs, global initiatives, and collaborative efforts shaping the future of rare disease research? Join the International Rare Diseases Research Consortium (IRDiRC) community by subscribing to […]
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A new analysis of orphan drug approvals across six global regulatory regions highlights significant delays in access to innovative therapies for people living with rare diseases. The study, conducted by […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) is pleased to announce the appointment of Shekhar Natarajan (Vice President, Head of EU and International Regulatory Affairs at Dyne Therapeutics, USA), as Chair, and Diana […]
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