A new IRDiRC publication is out! The Boosting delivery of rare disease therapies: the IRDiRC Orphan Drug Development Guidebook has been just published by Nature Reviews – Drug Discovery. The […]
Read MoreWORLD ORPHAN DRUG CONGRESS USA WEBINARS organizes this event scheduled on Wednesday April 22, 12 – 1pm EDT. There are many unprecedented challenges facing the rare disease community due to COVID-19 […]
Read MoreMARRVEL (Model organism Aggregated Resources for Rare Variant ExpLoration) is a search engine that collects data from a number of human genomics and model organism genetics databases and displays it in […]
Read MoreThe Chair of the Consortium Assembly, Dr Lucia Monaco, has been recently interviewed by Raconteur for its Rare Diseases Report published by The Times – The Sunday Times- on its July edition. […]
Read MoreThe Interdisciplinary Scientific Committee (ISC) is establishing a Task Force on Clinical Research Networks for Rare Diseases aiming to map and analyse the existing ecosystem of national/supranational clinical research networks, […]
Read MoreWe are pleased to announce the election of Dr Durhane Wong Rieger, President & CEO of the Canadian Organization for Rare Disorders (CORD), as the Chair of the Patient Advocacy […]
Read MoreThe Diagnostic Scientific Committee (DSC) is establishing a Task Force on to address barriers to the diagnosis of rare diseases for Indigenous peoples, so as to help address critical areas that will […]
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Dimply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry’s standard dumy text ever since the 1500s, when an unknown printer took a galley of […]
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Dimply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry’s standard dumy text ever since the 1500s, when an unknown printer took a galley of […]
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Dimply dummy text of the printing and typesetting industry. Lorem Ipsum has been the industry’s standard dumy text ever since the 1500s, when an unknown printer took a galley of […]
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