IRDiRC has just announced the launch of the latest publication titled “Advancing Diagnosis and Research for Rare Genetic Diseases in Indigenous Peoples” now available on nature.com.Read the publication here: https://www.nature.com/articles/s41588-023-01642-1“The […]
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The Interdisciplinary Scientific Committee (ISC) would like to broaden the committee membership. As such, the ISC has four openings for new members, specifically encouraging participants from the following regions: Middle East, Africa, North & South […]
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The Institute for Interdisciplinary Innovation in healthcare is organizing a symposium on “Gene therapy coming of age”, taking place on 28 March, 2024, at the Palace of Academies in Brussels, […]
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Join us in spreading awareness this Rare Disease Day.The International Rare Diseases Research Consortium (IRDiRC) is bringing together the efforts of member organizations. Check out this collaborative post showcasing their […]
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As part of our commitment in advancing initiatives related to rare diseases, IRDiRC is a proud partner at the 2024 World Orphan Drug Congress USA. This will be a defining […]
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The International Niemann-Pick Disease Registry (INPDR) announced a new collaboration with Sanofi, by giving controlled access to anonymized registry information via INPDR’s research “Gateway” platform. This collaboration will provide Sanofi […]
Read MoreWe are excited to announce that IRDiRC is now officially on LinkedIn! Get connected at: https://www.linkedin.com/company/international-rare-diseases-research-consortium-irdirc/about/
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Join the Canadian Organization for Rare Disorders (CORD) in celebrating the most impactful Rare Disease Day! This year’s edition marks the Anniversary of the announcement of Canada’s first National Rare […]
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Rare Disease Day is celebrated on the last day of February every year and is a special day for rare disease patients, researchers, and advocates. There are over 300 million people […]
Read MoreIRDiRC is delighted to co-host, together with Hope for Rare Foundation and Fudan University, the Global Rare Diseases Research Symposium & The Second China Rare Disease Research and Translational Medicine […]
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