“My care team consists of over 30 healthcare professionals and I can’t recall even one time where one of them asked me about my mental health” (60 y.o. female patient). Alexion is […]
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The Congressionally Directed Medical Research Programs (CDMRP) announces new FY24 Research Funding Opportunities spanning the research spectrum from mechanistic research to clinical trials and that are now available in Rare […]
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Just less than a month until the World Orphan Drug Congress in Boston! We are delighted to announce that IRDiRC is a proud partner and exhibitor at the World Orphan […]
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Just less than a month from the start of the RARE Drug Development Symposium, an event co-hosted by Global Genes and Orphan Disease Center of the University of Pennsylvania. The […]
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The Foundation for Rare Diseases (France) has launched a series of calls for proposals: Call for projects with ASL-HSP – “Research on hereditary spastic paraplegia”; Joint call for proposals with […]
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The US Food and Drug Administration (FDA) published a new grant call, on Use of Digital Health Technologies in Clinical Investigations to Support Drug and Biological Product Development (U01) Clinical […]
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A new network of Western Australian and international rare disease experts is being formed to develop precision medicines for the trickiest – and sometimes undiagnosed – cases across our hospital […]
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As the DNA Day is approaching on April 25th, to celebrate the 10th year anniversary of the Organization for Rare Diseases India (ORDI), an inaugural “ORDI Rare Star Awards” will […]
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The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to […]
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The International Rare Diseases Research Consortium’s (IRDiRC) Regulatory Scientific Committee (RSC) has two openings for new members who are from the following regions: Africa, Australasia or South America. Apply before […]
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