Author: Loranne Charrier

Commentary on 10 years of IRDiRC available as full text

We are proud to announce that the commentary on 10 years of progress and challenges of IRDiRC that was previously published in the prestigious journal Nature Reviews Drug Discovery is now fully available for reading. The article summarizes IRDiRC’s vision and goals and highlights its achievements and prospects after its first decade (2011–2021). The commentary […]

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Open letter: ECRD partner organisations call on the European Commission for a new European strategy on rare diseases

Following the 11th European Conference on Rare Diseases and Orphan Products (ECRD) that was held from June 27th to July 1st and was organized by EURORDIS and co-organized by Orphanet with IRDiRC serving as an Associate Partner, the involved parties came together to write an open letter to Commissioner Kyriakides of the European Commission, calling for a […]

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IRDiRC Joint CA-SC: Interview with Dr. Christina Waters

With the occasion of the IRDiRC Joint Consortium Assembly – Scientific Committees Meeting, held on June 1st-2nd, 2022, in Paris, France, IRDiRC launched a series of interviews with its members on the importance of strong international collaboration in the rare disease community. We launch today the first video of the series with Dr. Christina Waters, […]

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IRDiRC releases State of Play 2019-2021

PARIS, FRANCE, JULY 5th, 2022: The International Rare Diseases Research Consortium (IRDiRC) is pleased to announce today the release of its Rare Diseases Research Initiatives State of Play 2019-2021 Report. This report is based on scientific articles and press releases published between 2019 and 2021; it seeks to inform stakeholders and the rare diseases community […]

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