Rare Diseases International (RDI) would like to thank all who attended the RDI Informal Side-Event to the 75th World Health Assembly, which took place in Geneva, Switzerland, on May 24th, 2022.
The event was opened by the World Health Organization and discussed how health systems around the world would be strengthened by the development of a Global Network for Rare Diseases. The WHO also recognised the rare disease community’s proposed framework for the Network and affirmed its commitment to addressing rare diseases to achieve Universal Health Coverage.
Please download the Meeting Summary which includes highlights from the event, quotes from key speakers, and descriptions of the main programme areas discussed: the Operational Description of Rare Disease and the Global Rare Diseases Network (GNRD).