IRDiRC has four Scientific Committees, one each for Diagnostics, Therapies, Interdisciplinary, and Regulatory aspects of rare diseases research. The Therapies Scientific Committee (TSC) is a multi-stakeholder, multi-disciplinary group of experts in medical research and therapy development in rare diseases. Specifically, the TSC is devoted to pursuing the therapeutic development of IRDiRC, supporting the rare diseases research community in achieving goal 2, “1000 new rare disease treatments by 2027.”
The TSC would like to broaden the committee membership, to represent the worldwide rare diseases therapies community in its full width, from early innovation towards regulatory approval and therapeutic support of patients. As such, the TSC has three openings for new members, specifically encouraging participants from the following regions: Africa, Asia, Australasia or South America. The TSC is looking for rare disease experts from different backgrounds with the following qualities:
- Demonstratable track record in contributing to rare disease therapeutic development in either medicines and/ or medical devices in Africa, Asia, Australasia or South America (could be Industry, Regulatory, Research, Health Technology Appraisal / Payer, Clinical care or Patient group)
- Expertise will be considered from across the therapeutic spectrum, including from prevention, management, quality of life support to curative care
- Must be able to commit fully to active contribute at monthly teleconferences, a yearly meeting and regular TSC activities, article drafting, and email correspondence
Interested candidates are invited to send their resume, biosketch and letter of motivation to scisec-irdirc@ejprarediseases.org before the 16th of December 2022. More information about the The Therapies Scientific Committee (TSC) : https://irdirc.org/tsc/