The Therapies Scientific Committee (TSC) would like to broaden the committee membership, to represent the worldwide rare disease therapies community in its full width, from early innovation towards regulatory approval and therapeutic support of patients. As such, the TSC has three openings for new members, specifically encouraging participants from the following regions: Africa, Asia, Australasia or North & South America. We are looking for rare disease experts from different backgrounds with the following qualities:
- Demonstrable track record in contributing to rare disease therapeutic development in either medicines and/or medical devices/other non-pharmaceutical therapies in Africa, Asia, Australasia or North- or South America (could be Industry, Regulatory, Research, Health Technology Appraisal/Payer, Clinical care or Patient group)
- Expertise will be considered from across the therapeutic spectrum, including from prevention, management, quality of life support to curative care
- Must be able to commit fully and participate in monthly teleconferences, a yearly in-person meeting and regular TSC activities, article drafting, and email correspondence
If you are interested to apply, please send your CV, biosketch and letter of motivation to: scisec-irdirc@ejprarediseases.org (with the email subject “Application IRDiRC TSC”) before June 30th, 2023.