IRDiRC member organization Fondazione Telethon is delighted to share the press release of their participation in the European AGORA (Access to Gene therapies fOr RAre disease) Consortium. The AGORA Consortium was founded on September, 23rd 2022 with a focus on fostering alternative solutions to make life-saving gene therapies available for children born with rare genetic diseases.
According to the AGORA Consortium press release, “this initiative is further evidence of the urgency felt by the academic world and advanced scientific research to intervene on the negative path taken in the last year by therapies that very often represent the only chance for many children not only to survive, but also to live a normal and healthy life.”
The full press release is available for reading here.