European Conference on Rare Diseases & Orphan Products (ECRD)

ECRD will take place ONLINE on 14-15 May (more information)

The ECRD is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.
Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with all stakeholders in the rare disease community  – patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators. Join the ECRD 2020 online to take part in discussions to inform and build the future ecosystem for rare disease policies and services.

For more information on the conference’s new format we invite you to take a look at the updated programme at a glance. The conference’s full programme will continue to be updated as the content of each theme is being finalised and adapted to an online audience.

Please, register for the free ECRD 2020 pre-conference webinar taking place on Thursday, 23 April from 1 – 2pm CEST. This webinar is an opportunity to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy discussions throughout each theme of the ECRD.