COVID-19 and Rare Diseases: Share your experience

IRDiRC is interested at hearing from you, in the frame of your own engagement in Rare Diseases with COVID-19 crisis:

  • How it is affecting your work/practice
  • How it is redirecting your activities and priorities
  • What measures are being taken by you/your organizations
  • What solutions you envisage
  • What you feel IRDiRC could do for and with you.

Please send your contribution to the “Contact Us” webpage – under “category of query (required)” you will find the “COVID-19 and Rare Diseases: Share your experience” option -.

In addition, IRDiRC has set up a list of relevant documents on COVID-19 epidemic: