IRDiRC Chair and members, Dr. David Pearce, Dr. Gareth Baynam, Helene Cederroth and Mikk Cederroth have co-authored a new publication on the importance of the Undiagnosed Hackathon in finding new […]
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IRDiRC Funders Constituent Committee member, the Orphan Disease Center University of Pennsylvania, is offering 3 research opportunities focused on 3 different rare diseases. The program will provide a one-year grant […]
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The 14th edition of the Undiagnosed Diseases Network International Conference will take place in Rio de Janeiro, Brazil, on October 28-31. The Undiagnosed Diseases Network International (UDNI) was established in […]
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Cerebrum DAO is a community-powered network organization dedicated to sourcing, funding, and translating research that advances solutions to extend healthy brain lifespan. Their current research priorities include: Cerebrum DAO offers project […]
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ANR Generic Call for Proposals 2026 (AAPG 2026) is the main national funding call from French National Research Agency, having the goal to help the scientific community in public and […]
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EURORDIS-Rare Diseases Europe is calling on people living with a rare or undiagnosed condition, as well as their families, to register for the Rare Barometer panel and take part in […]
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ERDERA’s patient-engagement working group has opened an online survey to gauge how rare-disease patient organisations experience their role in publicly funded research, including projects financed under ERDERA’s predecessors, EJPRD and the […]
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The FDA’s Office of Orphan Products Development (OOPD) is excited to announce a funding opportunity for fiscal year 2026 aimed at advancing natural history studies in rare diseases and conditions: […]
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Global Genes, IRDiRC Patient Advocacy Constituent Committee member organizes its 2025 RARE Drug Development Symposium, being held on 3-4 September, 2025 in Boston (MA, USA). This hands-on, expert-led event is […]
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The Wiedemann-Steiner Syndrome Foundation, in partnership with the Orphan Disease Center University of Pennsylvania, is proud to announce three new 2-year research grants to support scientific advancement in Wiedemann-Steiner Syndrome […]
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