August 13th 2020
The collective challenge of rare diseases has risen up the policy agenda in both the AsiaPacific region and globally.
Various new and revised health and social system measures in Australia, China, Japan, South Korea and Taiwan—along with the 2018 Asia-Pacific Economic Co-operation (APEC) Rare Disease Action Plan—reflect a growing recognition of the need to act.
As the region begins to get to grips with rare diseases, it will need to address significant challenges, some of which are still emerging.
Health and social systems are making progress in many of these areas, but finding solutions remains a work in progress.
IRDiRC Patient Advocates Constituent Committee members Ritu Jain, Yukiko Nishimura, and Kevin Huang have contributed to this article.
Click here to have access to the full paper.
