Tag: rare diseases patients

Science/AAAS Webinar: “Knowledge is power: The urgent need to internationalize databases for rare disease patients”

The recording of the Science/AAAS webinar on the subject “Knowledge is power: The urgent need to internationalize databases for rare disease patients” will be made available on September 29th at 12:00 PM EST. The webinar is expected to last approximately 60 minutes, during which a board of global experts (among which Lucia Monaco, former IRDiRC […]

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