IRDiRC’s Patient Advocacy Constituent Committee member, EURORDIS-Rare Diseases Europe is organizing a new edition of the European Conference on Rare Diseases & Orphan Products (ECRD), the largest patient-led policy-shaping event on rare diseases in Europe.
Taking place five years after Rare2030 and midway to the 2028 World Health Organization Global Plan target, ECRD 2026 will bring Europe’s rare disease community together to plan for the next phase of action.
This edition of ECRD will engage patients, policymakers, clinicians, researchers and industry in a community-led effort to co-develop an EU Action Plan (or Strategic Framework) for Rare Diseases — a collective exercise in “planning for a Plan.” The programme will cover a broad range of policy topics, including therapy development and access to treatments, timely and accurate diagnosis, advances in holistic care, specialised healthcare, health technology assessments, and mental health.
Registration is open at the following link: https://www.rare-diseases.eu/register/