Don’t miss out the European Haemophilia Consortium (EHC) Conference that will take place this year on 6-8 October, 2023, in Zagreb, Croatia, where IRDiRC Interdisciplinary Scientific Committee (ISC) Vice Chair, […]
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Rare disease research presents unique challenges due to the small size of the populations of people living with these conditions. Collecting and curating large study cohorts in rare diseases presents […]
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IRDiRC is delighted to present you Karla Ruiz de Castilla, PACC member representative of the Iberoamerican Alliance for Rare Diseases (ALIBER). Karla is also the President of ESPERANTRA, a non-profit […]
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The Rare Disease (RD) Moonshot steering group has just published its recommendations for research funders and health research players from the industry and public sector on research needs that can […]
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Inaugurated in 2012, China Rare Disease Summit has become the largest and the most comprehensive rare disease conference in China. The annual summit promotes open communications among multiple stakeholders, fosters […]
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IRDiRC proudly announces the publication of the manuscript “Targeting shared molecular etiologies to accelerate drug development for rare diseases“ online, today. The manuscript is published in the EMBO Molecular Medicine […]
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The Innovative Health Initiative (IHI) Program Office just pre-published the call for proposals on “Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases”. Check out additional details […]
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The International Rare Diseases Research Consortium (IRDiRC) announces new leadership changes in its Funders Constituent Committee (FCC). Dr. Adam Hartman (Program Director at the National Institute of Neurological Disorders and […]
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This call builds on World Health Organization’s enduring efforts in the field of Genomics and follows the publication of the Report “Accelerating access to genomics for global health: promotion, implementation, […]
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The Innovative Health Initiative (IHI) has revealed the potential topics for inclusion in their upcoming calls for proposals. With the aim of enabling potential applicants to begin preparations, IHI has […]
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