The Canadian Organization for Rare Disorders (CORD) is very excited to be celebrating this once-in-four- years February 29th Rare Disease Day in Ottawa (Canada) on February 28-29, 2024. A panel, […]
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Health Technology Assessment International (HTAi) in late 2023 approved the set up of the HTAi Rare Diseases Interest Group (RDIG), the role of the group is a service to members […]
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The latest IRDiRC paper, “Drug Repurposing for Rare: Progress and Opportunities for the Rare Disease Community” has been published in Frontiers in Medicine. The paper is available here. This open-access […]
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The European Joint Programme on Rare Diseases, together with the Companies Constituent Committee (CCC) member EFPIA, is organizing the training webinar: “Real-World data, Machine learning and Deep analytics in rare […]
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Project CASK, in collaboration with Orphan Disease Center, is seeking proposals to advance research that supports therapeutic development for CASK gene disorders. The project will consider applications that will make […]
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The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork […]
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The Innovative Health Initiative (IHI) has now launched IHI – call 6 and IHI – call 7. IHI – call 6 is a two-stage call for proposals with the following […]
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Join us for this 2-day multi-stakeholder event on 29-30 January covering the day’s most pressing ethical issues in non-trial preapproval access at CUPA Con 2024! In-person attendees will be able […]
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The Orphan Disease Center (ODC) at the University of Pennsylvania, in collaboration with the Loulou Foundation, is pleased to announce the 2024 CDKL5 Program of Excellence Pilot Grant Program. The […]
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IRDiRC is delighted to announce that multiple representatives of the Task Force “Drug Repurposing Guidebook”, including Therapies Scientific Committee (TSC) vice chair Anneliene Jonker (Duchenne Parent Project, The Netherlands) and […]
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