IRDiRC is delighted to co-host, together with Hope for Rare Foundation and Fudan University, the Global Rare Diseases Research Symposium & The Second China Rare Disease Research and Translational Medicine […]
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The Committee for Orphan Medicinal Products (COMP) organized their Plenary Meeting last week (13-15 February), that was chaired by Regulatory Scientific Committee (RSC) Vice Chair, Violeta Stoyanova-Beninska, and Armando Magrelli. […]
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Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. […]
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A roundtable of EU and national policymakers, industry experts and patients will gather together to discuss the best approach to define unmet medical needs and Belgium’s multi-criteria approach. Around 36 […]
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The Canadian Organization for Rare Disorders (CORD) is very excited to be celebrating this once-in-four- years February 29th Rare Disease Day in Ottawa (Canada) on February 28-29, 2024. A panel, […]
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Health Technology Assessment International (HTAi) in late 2023 approved the set up of the HTAi Rare Diseases Interest Group (RDIG), the role of the group is a service to members […]
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The European Joint Programme on Rare Diseases, together with the Companies Constituent Committee (CCC) member EFPIA, is organizing the training webinar: “Real-World data, Machine learning and Deep analytics in rare […]
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Project CASK, in collaboration with Orphan Disease Center, is seeking proposals to advance research that supports therapeutic development for CASK gene disorders. The project will consider applications that will make […]
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The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork […]
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The Innovative Health Initiative (IHI) has now launched IHI – call 6 and IHI – call 7. IHI – call 6 is a two-stage call for proposals with the following […]
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