IRDiRC proudly announces the publication of the manuscript “Targeting shared molecular etiologies to accelerate drug development for rare diseases“ online, today. The manuscript is published in the EMBO Molecular Medicine […]
Read MoreThe Innovative Health Initiative (IHI) Program Office just pre-published the call for proposals on “Establishing novel approaches to improve clinical trials for rare and ultra-rare diseases”. Check out additional details […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) announces new leadership changes in its Funders Constituent Committee (FCC). Dr. Adam Hartman (Program Director at the National Institute of Neurological Disorders and […]
Read MoreThis call builds on World Health Organization’s enduring efforts in the field of Genomics and follows the publication of the Report “Accelerating access to genomics for global health: promotion, implementation, […]
Read MoreThe Innovative Health Initiative (IHI) has revealed the potential topics for inclusion in their upcoming calls for proposals. With the aim of enabling potential applicants to begin preparations, IHI has […]
Read MoreThe Therapies Scientific Committee (TSC) would like to broaden the committee membership, to represent the worldwide rare disease therapies community in its full width, from early innovation towards regulatory approval […]
Read MoreThe National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to an annual Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders […]
Read MoreGlobal Genes is excited to share the news that the Xcelerate RARE Open Science Data Challenge has officially opened! The Xcelerate RARE: A Rare Disease Open Science Data Challenge is […]
Read MoreThis year the annual conference of the International Mouse Phenotyping Consortium (IMPC) will be held at Keble College, Oxford, UK from the 10-11 July, 2023. The conference is entitled: “The […]
Read MoreThe EURORDIS Open Academy has launched a survey to know more about training needs, such as the reasons for engaging in training, main topics of interest, and the roadblocks that […]
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