Earlier this year, members of the seven IRDiRC committees gathered in Sofia, Bulgaria for the annual IRDiRC Consortium Assembly and Scientific Committees (SC-SC) Meeting.
Over two days, discussions focused on patient partnership, regulatory science, orphan drug development, emerging technologies, and international cooperation through multi-stakeholder national hubs such as the National Mirror Groups (NMGs)(more information: https://erdera.org/international-alignment/national-mirror-groups/).
We thank all speakers, committee members, patient representatives, researchers, regulators, industry partners, and stakeholders whose contributions helped make the meeting a success.
Watch the video to discover some of the key moments, discussions, and collaborations that are helping to drive progress in rare disease research and innovation.
CA-SC Meeting Report: https://irdirc.org/wp-content/uploads/2026/05/Report-CA-SC-Sofia-1.pdf
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